ANGEL AID Unveils Raregivers™ Global Mental Health Initiative for Caregivers, Patients and Professionals
Utilizing a first-of-its-kind, six-phase emotional journey map, the program addresses the mental health crisis in the rare disease…
BrightInsight and UCB Partner to Build Digital Care Solutions for Rare Diseases
UCB’s Digital Care Solutions for Myasthenia Gravis to be Built on the BrightInsight Platform BrightInsight, Inc., provider of…
First Amazon Alexa Skill Designed to Engage with Those Impacted by Lennox-Gastaut Syndrome – a Rare and Severe Form of Childhood-Onset Epilepsy
Eisai launches “Ella the Jellyfish” Bringing Comfort and Support to Children with LGS, as well as their Families and…